USA
Director, Family Empowerment, Rettsyndrome.org
www.rettsyndrome.org
Paige Nues dedicates her time to providing a safety net of accurate information, emotional support, and connections to empower the families, caregivers, and support teams of children with Rett syndrome at all stages of life. Paige has served on the Board of Directors, as a Regional Representative, and is parent founder of Katie’s Clinic for Rett Syndrome at UCSF Benioff Children’s Hospital Oakland. She enjoyed a successful career in sales, marketing, and business development with Fortune 100 companies prior to her daughter Katie’s diagnosis of Rett syndrome in 2003. She and her husband Jesse live in California, proud parents of three extraordinary girls.
“Where you put your effort is where you get results.” It takes a team of caring family and friends, educated physicians, trained therapists, willing educators, and an open-minded supportive community to raise a child with Rett syndrome towards her greatest potential. We will discover real treatments that will lead to a reversal of symptoms, but finding these treatments will take funding, time, and brilliant scientific minds. It is greatly through dedication and careful stewardship of donations that we approach the funding and people-power to achieve the results we all want. While the research makes progress, and funds are raised to fuel it, I pledge as Rettsyndrome.org’s Director of Family Empowerment to commit all of my efforts into strengthening that safety net of support and information that gives families the direction, strength and connections they need to care and advocate for their child with Rett syndrome today. Our girls deserve this, and so do our families that support them.
